Download
12913_2024_Article_11563.pdf 1,09MB
WeightNameValue
1000 Titel
  • Awareness, use and perception of patient versions of clinical practice guidelines – a national cross-sectional survey among patients with a cancer diagnosis and healthcare providers
1000 Autor/in
  1. Blödt, S. |
  2. Erstling, S. |
  3. Becker, M. |
  4. Carl, G. |
  5. Follmann, M. |
  6. Frenz, S. |
  7. Holmberg, C. |
  8. Langer, T. |
  9. Pachanov, A. |
  10. Pieper, D. |
  11. Nothacker, M. |
1000 Verlag
  • BioMed Central
1000 Erscheinungsjahr 2024
1000 Publikationstyp
  1. Artikel |
1000 Online veröffentlicht
  • 2024-10-09
1000 Erschienen in
1000 Quellenangabe
  • 24(1):1211
1000 Copyrightjahr
  • 2024
1000 Lizenz
1000 Verlagsversion
  • https://doi.org/10.1186/s12913-024-11563-2 |
  • https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11465693/ |
1000 Publikationsstatus
1000 Begutachtungsstatus
1000 Sprache der Publikation
1000 Abstract/Summary
  • Background!#!To investigate awareness, use, and perceptions of the patient guidelines (PGs) of the German Guideline Program in Oncology (GGPO) and to explore general preferences regarding cancer information among patients and healthcare providers (HCPs).!##!Methods!#!Two cross-sectional surveys among patients with cancer (November 2020-May 2021) and among HCPs (April -June 2021) were set up as anonymised, self-administered, semi-structured online surveys, including open-ended questions. Data were analysed with descriptive statistics and qualitative thematic analysis. Patients were recruited from national self-help organisations and certified cancer centres located all over Germany. HCPs were recruited from cancer centres, scientific medical societies and guideline groups.!##!Results!#!Of 816 participating patients, 45% were aware of the GGPO-PGs, while 55% of the 455 participating HCPs were aware of them. Of those aware of the GGPO-PGs, 65% of patients and 86% of HCPs perceived them as helpful, while 95% in both groups saw them as comprehensive. Seventy-five percent of patients and 85% of HCPs were satisfied with the GGPO-PGs, 22%/13% were partially satisfied, and 3%/2% were rather/not at all satisfied. In addition to self-help organisations, physicians and hospitals were perceived as central in distributing the GGPO-PGs. More patients (78%) than HCPs (56%) stated a preference for detailed information, although the wish for concise information - e.g. decision aids - was concurrently expressed by the majority of all participants. Thematic analysis showed that up-to-dateness, trustworthiness, and supportive messaging are important properties for PGs.!##!Conclusions!#!HCPs found the GGPO-PGs helpful, but awareness was low, which suggests that dissemination should be improved. This is also true for patients; however, further research needs to be done to increase the helpfulness of PGs for patients. Oncological PGs seem to be needed in different formats according to patients' situational needs. Theory-driven research should investigate how to best frame patient information in a supportive way.
1000 Sacherschließung
lokal Surveys and Questionnaires [MeSH]
lokal Implementation
lokal Medical Oncology [MeSH]
lokal Patient version
lokal Cancer
lokal Aged [MeSH]
lokal Health Personnel/psychology [MeSH]
lokal Practice Guidelines as Topic [MeSH]
lokal Self-help organisations
lokal Clinical practice guidelines
lokal Male [MeSH]
lokal Attitude of Health Personnel [MeSH]
lokal Neoplasms/psychology [MeSH]
lokal Neoplasms/therapy [MeSH]
lokal Healthcare providers
lokal Female [MeSH]
lokal Formats
lokal Adult [MeSH]
lokal Humans [MeSH]
lokal Middle Aged [MeSH]
lokal Cross-Sectional Studies [MeSH]
lokal Oncology
lokal Health Knowledge, Attitudes, Practice [MeSH]
lokal Dissemination
lokal Research
lokal Germany [MeSH]
1000 Fächerklassifikation (DDC)
1000 Liste der Beteiligten
  1. https://frl.publisso.de/adhoc/uri/QmzDtmR0LCBTLg==|https://frl.publisso.de/adhoc/uri/RXJzdGxpbmcsIFMu|https://frl.publisso.de/adhoc/uri/QmVja2VyLCBNLg==|https://frl.publisso.de/adhoc/uri/Q2FybCwgRy4=|https://frl.publisso.de/adhoc/uri/Rm9sbG1hbm4sIE0u|https://frl.publisso.de/adhoc/uri/RnJlbnosIFMu|https://frl.publisso.de/adhoc/uri/SG9sbWJlcmcsIEMu|https://frl.publisso.de/adhoc/uri/TGFuZ2VyLCBULg==|https://frl.publisso.de/adhoc/uri/UGFjaGFub3YsIEEu|https://frl.publisso.de/adhoc/uri/UGllcGVyLCBELg==|https://frl.publisso.de/adhoc/uri/Tm90aGFja2VyLCBNLg==
1000 Hinweis
  • DeepGreen-ID: 82883dbd67e14e2ba4c8955b722de532 ; metadata provieded by: DeepGreen (https://www.oa-deepgreen.de/api/v1/), LIVIVO search scope life sciences (http://z3950.zbmed.de:6210/livivo), Crossref Unified Resource API (https://api.crossref.org/swagger-ui/index.html), to.science.api (https://frl.publisso.de/), ZDB JSON-API (beta) (https://zeitschriftendatenbank.de/api/), lobid - Dateninfrastruktur für Bibliotheken (https://lobid.org/resources/search)
1000 Label
1000 Dateien
1000 Objektart article
1000 Beschrieben durch
1000 @id frl:6522695.rdf
1000 Erstellt am 2025-07-06T16:27:22.302+0200
1000 Erstellt von 322
1000 beschreibt frl:6522695
1000 Zuletzt bearbeitet 2025-07-29T16:57:04.924+0200
1000 Objekt bearb. Tue Jul 29 16:57:04 CEST 2025
1000 Vgl. frl:6522695
1000 Oai Id
  1. oai:frl.publisso.de:frl:6522695 |
1000 Sichtbarkeit Metadaten public
1000 Sichtbarkeit Daten public
1000 Gegenstand von

View source