How to customize common data models for rare diseases: an OMOP-based implementation and lessons learned

2024 . Ahmadi, Najia | Zoch, Michele | Guengoeze, Oya | Facchinello, Carlo | Mondorf, Antonia | Stratmann, Katharina | Musleh, Khader | Erasmus, Hans-Peter | Tchertov, Jana | Gebler, Richard | Schaaf, Jannik | Frischen, Lena S. | Nasirian, Azadeh | Dai, Jiabin | Henke, Elisa | Tremblay, Douglas | Srisuwananukorn, Andrew | Bornhäuser, Martin | Röllig, Christoph | Eckardt, Jan-Niklas | Middeke, Jan Moritz | Wolfien, Markus | Sedlmayr, Martin