EURO-NMD registry: federated FAIR infrastructure, innovative technologies and concepts of a patient-centred registry for rare neuromuscular disorders

2024 . Atalaia, Antonio | Wandrei, Dagmar | Lalout, Nawel | Thompson, Rachel | Tassoni, Adrian | ’t Hoen, Peter A. C. | Athanasiou, Dimitrios | Baker, Suzie-Ann | Sakellariou, Paraskevi | Paliouras, Georgios | D’Angelo, Carla | Horvath, Rita | Mancuso, Michelangelo | van der Beek, Nadine | Kornblum, Cornelia | Kirschner, Janbernd | Pareyson, Davide | Bassez, Guillaume | Blacas, Laura | Jacoupy, Maxime | Eng, Catherine | Lamy, François | Plançon, Jean-Philippe | Haberlova, Jana | Brusse, Esther | Hoeijmakers, Janneke G. J. | de Visser, Marianne | Claeys, Kristl G. | Paradas, Carmen | Toscano, Antonio | Silani, Vincenzo | Gyenge, Melinda | Reviers, Evy | Hamroun, Dalil | Vroom, Elisabeth | Wilkinson, Mark D. | Lochmuller, Hanns | Evangelista, Teresinha