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1000 Titel
  • A prospective investigation of developmental trajectories of psychosocial adjustment in adolescents facing a chronic condition - study protocol of an observational, multi-center study
1000 Autor/in
  1. Warschburger, Petra |
  2. Petersen, Ann-Christin |
  3. von Rezori, Roman E. |
  4. Buchallik, Friederike |
  5. Baumeister, Harald |
  6. Holl, Reinhard W. |
  7. Minden, Kirsten |
  8. Müller-Stierlin, Annabel S. |
  9. Reinauer, Christina |
  10. Staab, Doris |
1000 Erscheinungsjahr 2021
1000 Publikationstyp
  1. Artikel |
1000 Online veröffentlicht
  • 2021-09-14
1000 Erschienen in
1000 Quellenangabe
  • 21(1):404
1000 Copyrightjahr
  • 2021
1000 Lizenz
1000 Verlagsversion
  • https://doi.org/10.1186/s12887-021-02869-9 |
  • https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8438102/ |
1000 Publikationsstatus
1000 Sprache der Publikation
1000 Abstract/Summary
  • Background: Relatively little is known about protective factors and the emergence and maintenance of positive outcomes in the field of adolescents with chronic conditions. Therefore, the primary aim of the study is to acquire a deeper understanding of the dynamic process of resilience factors, coping strategies and psychosocial adjustment of adolescents living with chronic conditions. Methods/design: We plan to consecutively recruit N = 450 adolescents (12-21 years) from three German patient registries for chronic conditions (type 1 diabetes, cystic fibrosis, or juvenile idiopathic arthritis). Based on screening for anxiety and depression, adolescents are assigned to two parallel groups - 'inconspicuous' (PHQ-9 and GAD-7 < 7) vs. 'conspicuous' (PHQ-9 or GAD-7 >= 7) - participating in a prospective online survey at baseline and 12-month follow-up. At two time points (T1, T2), we assess (1) intra- and interpersonal resiliency factors, (2) coping strategies, and (3) health-related quality of life, well-being, satisfaction with life, anxiety and depression. Using a cross-lagged panel design, we will examine the bidirectional longitudinal relations between resiliency factors and coping strategies, psychological adaptation, and psychosocial adjustment. To monitor Covid-19 pandemic effects, participants are also invited to take part in an intermediate online survey. Discussion: The study will provide a deeper understanding of adaptive, potentially modifiable processes and will therefore help to develop novel, tailored interventions supporting a positive adaptation in youths with a chronic condition. These strategies should not only support those at risk but also promote the maintenance of a successful adaptation.
1000 Sacherschließung
gnd 1206347392 COVID-19
lokal Adolescents
lokal Type 1 diabetes
lokal Protective factors
lokal Cystic fibrosis
lokal Quality of Life [MeSH]
lokal COVID-19 [MeSH]
lokal Adaptation, Psychological [MeSH]
lokal Chronic conditions
lokal Observational Studies as Topic [MeSH]
lokal Child [MeSH]
lokal SARS-CoV-2 [MeSH]
lokal Adolescent [MeSH]
lokal Coping
lokal Depression/epidemiology [MeSH]
lokal Prospective
lokal Study Protocol
lokal Humans [MeSH]
lokal Prospective Studies [MeSH]
lokal Multicenter Studies as Topic [MeSH]
lokal Behavior and development
lokal Pandemics [MeSH]
lokal Quality of life
lokal Young Adult [MeSH]
lokal Juvenile idiopathic arthritis
lokal Resiliency
1000 Liste der Beteiligten
  1. https://orcid.org/0000-0001-7979-7451|https://frl.publisso.de/adhoc/uri/UGV0ZXJzZW4sIEFubi1DaHJpc3Rpbg==|https://frl.publisso.de/adhoc/uri/dm9uIFJlem9yaSwgUm9tYW4gRS4=|https://frl.publisso.de/adhoc/uri/QnVjaGFsbGlrLCBGcmllZGVyaWtl|https://frl.publisso.de/adhoc/uri/QmF1bWVpc3RlciwgSGFyYWxk|https://frl.publisso.de/adhoc/uri/SG9sbCwgUmVpbmhhcmQgVy4=|https://frl.publisso.de/adhoc/uri/TWluZGVuLCBLaXJzdGVu|https://frl.publisso.de/adhoc/uri/TcO8bGxlci1TdGllcmxpbiwgQW5uYWJlbCBTLg==|https://frl.publisso.de/adhoc/uri/UmVpbmF1ZXIsIENocmlzdGluYQ==|https://frl.publisso.de/adhoc/uri/U3RhYWIsIERvcmlz
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1000 Erstellt am 2023-11-15T12:21:30.257+0100
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1000 Zuletzt bearbeitet Thu Nov 30 19:50:46 CET 2023
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