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1000
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Abstract/Summary
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<jats:title>Abstract</jats:title><jats:sec>
<jats:title>Purpose</jats:title>
<jats:p>Palliative day care clinics (PDCCs) complement inpatient and home palliative care and provide access to a range of multi-professional services. However, they are not part of standard care in Germany. Yet, international studies show that PDCCs have a positive impact on e.g. quality of life.</jats:p>
<jats:p>To evaluate one of the first
PDCCs in Germany (Aschaffenburg-Alzenau (PDCC-AA)) by describing the
experiences, satisfaction, challenges, wishes of patients and relatives and
possible alternatives to treatment in the PDCC.</jats:p>
</jats:sec><jats:sec>
<jats:title>Methods</jats:title>
<jats:p>Qualitative study using semi-structured
telephone interviews. Data was analyzed using qualitative structuring content
analysis according to Kuckartz with deductive a priori categories and inductive
subcategories.</jats:p>
</jats:sec><jats:sec>
<jats:title>Results</jats:title>
<jats:p>A total of 31 patients and 38 relatives
completed telephone interviews. The majority of patients were diagnosed with a cancer
or tumor disease. The following four main themes emerged: (1) alternatives to
treatment at the PDCC, (2) symptom relief, (3) sense of security, (4) “everyday
life framing” (normality of everyday life).</jats:p>
<jats:p>Participants valued the medical
treatment (especially for pain), psychosocial support given and having direct
access to a range of services (e.g., wound care and pleural drainage), while
relatives valued being provided respite services. A sense of security,
availability of therapies, and devoted time that healthcare providers spent to
explain e.g., treatment options were mentioned most positively, as well as
confidence in dealing with the illness. As to whether there was an alternative
to treatment in the PDCC, some saw further inpatient stays, the emergency room
or care by general practitioners as options (although not preferred). Patients
expressed concern that they were not treated and informed according to their
needs in other care settings.</jats:p>
</jats:sec><jats:sec>
<jats:title>Conclusions</jats:title>
<jats:p>PDCCs may close a gap between
inpatient and home palliative care. Participants mentioned that hospital stays
can be delayed or even prevented. </jats:p>
</jats:sec>
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1000
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Hinweis
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DeepGreen-ID: 910cedebe8f549d5a9f10cfa0eb5df5a ; metadata provieded by: DeepGreen (https://www.oa-deepgreen.de/api/v1/), LIVIVO search scope life sciences (http://z3950.zbmed.de:6210/livivo), Crossref Unified Resource API (https://api.crossref.org/swagger-ui/index.html), to.science.api (https://frl.publisso.de/), ZDB JSON-API (beta) (https://zeitschriftendatenbank.de/api/), lobid - Dateninfrastruktur für Bibliotheken (https://lobid.org/resources/search)
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