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1000
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Abstract/Summary
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<jats:title>Abstract
</jats:title><jats:sec>
<jats:title>Purpose</jats:title>
<jats:p>Lower-grade gliomas (LGG) are mostly diagnosed in working-aged adults and rarely cured. LGG patients may face chronic impairments (e.g. fatigue, cognitive deficits). Self-management can improve clinical and psychosocial outcomes, yet how LGG patients self-manage the consequences of their tumour and its treatment is not fully understood. This study, therefore, aimed to identify and understand how LGG patients engage in the self-management of their condition.</jats:p>
</jats:sec><jats:sec>
<jats:title>Methods</jats:title>
<jats:p>A diverse group of 28 LGG patients (age range 22–69 years; male <jats:italic>n</jats:italic> = 16, female <jats:italic>n</jats:italic> = 12; mean time since diagnosis = 8.7 years) who had completed primary treatment, were recruited from across the United Kingdom. Semi-structured interviews were conducted. Informed by a self-management strategy framework developed in cancer, directed content analysis identified and categorised self-management types and strategies used by patients.</jats:p>
</jats:sec><jats:sec>
<jats:title>Results</jats:title>
<jats:p>Overall, 20 self-management strategy types, comprising 123 self-management strategies were reported; each participant detailed extensive engagement in self-management. The most used strategy types were ‘using support’ (<jats:italic>n</jats:italic> = 28), ‘creating a healthy environment’ (<jats:italic>n</jats:italic> = 28), ‘meaning making’ (<jats:italic>n</jats:italic> = 27), and ‘self-monitoring’ (<jats:italic>n</jats:italic> = 27). The most used strategies were ‘accepting the tumour and its consequences’ (<jats:italic>n</jats:italic> = 26), ‘receiving support from friends (<jats:italic>n</jats:italic> = 24) and family’ (<jats:italic>n</jats:italic> = 24), and ‘reinterpreting negative consequences’ (<jats:italic>n</jats:italic> = 24).</jats:p>
</jats:sec><jats:sec>
<jats:title>Conclusions</jats:title>
<jats:p>This study provides a comprehensive understanding of the strategies used by LGG patients to self-manage their health and wellbeing, with a diverse, and substantial number of self-management strategies reported.</jats:p>
</jats:sec><jats:sec>
<jats:title>Implications for Cancer Survivors</jats:title>
<jats:p>The findings will inform the development of a supported self-management intervention for LGG patients, which will be novel for this patient group.
</jats:p>
</jats:sec>
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1000
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Hinweis
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DeepGreen-ID: 13df2f6784b049ecacb24b7db57928f9 ; metadata provieded by: DeepGreen (https://www.oa-deepgreen.de/api/v1/), LIVIVO search scope life sciences (http://z3950.zbmed.de:6210/livivo), Crossref Unified Resource API (https://api.crossref.org/swagger-ui/index.html), to.science.api (https://frl.publisso.de/), ZDB JSON-API (beta) (https://zeitschriftendatenbank.de/api/), lobid - Dateninfrastruktur für Bibliotheken (https://lobid.org/resources/search)
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