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Identification of the most relevant aspects of spinal muscular atrophy (SMA) with impact on the quality of life of SMA patients and their caregivers: the PROfuture project, a qualitative study

2024 . de Lemus, Mencía | Cattinari, Maria Grazia | Pascual, Samuel I. | Medina, Julita | García, Mar | Magallón, Ana | Dumont, María | Rebollo, Pablo

Quality of couple relationship and associated factors in parents of NICU-cared infants during the first year after birth

2024 . Persson, Christine | Ericson, Jenny | Eriksson, Mats | salari, raziye | Flacking, Renée

Communication patterns in families affected by parental cancer from the healthy parents’ perspective—process evaluation of the complex intervention Family-SCOUT

2024 . Heier, L. | Weiß, J. | Heuser, C. | Nakata, H. | Brock-Midding, E. | Horbach-Bremen, R. | Brümmendorf, T. H. | Brüne, M. | Dohmen, M. | Drueke, B. | Geiser, F. | Holsteg, S. | Icks, A. | Karger, A. | Panse, J. | Petermann-Meyer, A. | Viehmann, A. | Ernstmann, N.

Taking emic and etic to the family level: interlinking parents’ and children’s COVID-19 views and experiences in Germany

2024 . Berner-Rodoreda, Astrid | Baum, Nina | Wachinger, Jonas | Zangerl, Kathrin | Hoegl, Henriette | Bärnighausen, Till

Reliability of Parental Recall of Birth Weight, Birth Length and Gestational Age in the Multicenter Cohort Study IDEFICS

2024 . Swenne, Annika | Veidebaum, Toomas | Tornaritis, Michael | Dello Russo, Marika | Moreno, Luis A. | Molnár, Dénes | Mårild, Staffan | De Henauw, Stefaan | Pigeot, Iris | Pohlabeln, Hermann

Aufwachsen in einem psychisch belasteten Familienumfeld: Ergebnisse der bundesweit repräsentativen Studie „Kinder in Deutschland 0–3 2022“

2024 . Hänelt, Maria | Neumann, Anna | Lux, Ulrike | Renner, Ilona

The impact of a child’s inborn error of metabolism: the parents’ perspectives on restrictions, discrimination, family planning, and emergency management

2024 . Harings, Tanjana | Neininger, Martina | Eisenhofer, Simone | Thiele, Alena | Kiess, Wieland | Bertsche, Astrid | Bertsche, Thilo | Beblo, Skadi

Fear of progression in parents of childhood cancer survivors: prevalence and associated factors

2021 . Peikert, Mona Leandra | Inhestern, Laura | Krauth, Konstantin A. | Escherich, Gabriele | Rutkowski, Stefan | Kandels, Daniela | Schiekiera, Louis J. | Bergelt, Corinna